| Site Link: http://www.freewebs.com/fefe1502/index.htm |
| This is the site of NOAH BROWN who lives in West Yorkshire and has Infantile Batten Disease. |
| Site Link: www.bdfa-uk.org.uk |
| Site Description : The BDFA is a UK organisation providing support, information and networking opportunities for the families, carers and professionals giving care to children and adults with Battens disease. This site has a lot of information, links etc on Battens Disease |
| Site Link : www.ucl.ac.uk/LMCB/pages/mole.html |
| Site Description : Sara Mole PHD - Reader in Molecular Cell Biology - is the researcher looking into Variant Late Infantile Batten Disease whose laboratory we are raising money to help fund find out more about her work on the link above. |
| Site Link : www.nathansbattle.com |
| Site Description : This story is more than a "sick kid" story. It embodies a parent's relentless quest to save his sons, who both have Late Infantile Battens Disease, despite physicians telling him "there is nothing that can be done". |
| Site Link : www.jordanjaytrust.co.uk |
| Site Description : Jordan and now his sister Jasmine both have battens and their parents have been helping to fundraise on behalf of Nathans Battle in the hope that the a cure will be found. |
| Site Link : www.ssrf-trust.co.uk |
| Site Description : This family have set up a trust for Saul and Savannah-Rose, 3 year old twins with Infantile Battens, to help with appropriate & necessary medical equipment they will need, help fund any future trials, travelling costs & research into this horrific disease |
| Site Link : www.connorsbattle.com |
| Site Description : Connor Albee lives in Reno, Nevada USA, Connor has Juvenille Batten Disease. Read his story and his familes fight for a cure at www.connorsbattle.com. |
| Site Link : http://neuroscience.iop.kcl.ac.uk/psdl |
Site Description : Dr Jonathan Cooper Reader in Experimental Neuropathology at Kings College London
is one of the researchers looking into Batten Disease you can find out more on the above link. |
| Site Link : www.curebattensdisease.com |
| Site Description : Nicholas is 12 years old and lives in America. Nicholas has Juvenille Battens Disease, read his and his families story on the above link. |
| Site Link : www.lesburons.com |
| Site Description : Carp fishing lake in France - Rob & Lin from Les Burons, France kindly donated one weeks fishing holiday for us to raffle visit their web site on the above link |
| Site Link : www.carefromcontraband.com |
| Site Description : The above company can provide all your charity supplies. They are a one stop shop which can handle all your fundraising requirements. |
| Site Link : www.fightsma.org |
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