| pictures of john as a mascot |
Comment no.350 |
| When are the pictures of john as a mascot going on the website? you can tell he thoroughly enjoyed it :) is the video going on too? x |
| Posted by gemma philpott on Tuesday 18th of November 2008 08:41:42 AM |
| xxx |
Comment no.349 |
| Hiya kids!
I saw your aunt (I think!) at a presentation evening a couple of weeks ago as she bravely abseiled down the YMCA building for you!
After hearing her speak about your situations and after speaking to your mum on the phone, my heart went out to you.
I will be speaking to the Rotary Club who organised the abseil so that I can abseil for your charity next year as I did it this year for my nephew's disability school!
I will also be gathering a load of mates and get them to do it too!
Hopefully it will all get sorted and we'll raise lots of pennies!
Lots of love, Steph xxx |
| Posted by Steph on Sunday 16th of November 2008 12:27:12 PM |
| hi |
Comment no.348 |
| Sorry about your dad lee told me!
I have i new job now so i have weekends off lee was saying that you what us to come down soon you will have to let us know when is best for you and we can sort something out. it will be nice if we can see john and bridie. xxxxx
|
| Posted by victoria on Sunday 02nd of November 2008 07:37:21 AM |
| 'Roundhouse' Quiz Night - Tuesday 2nd December at 8.30pm |
Comment no.347 |
|
Just to let you all know that the next bi-monthly Charity Quiz Night will be at the Roundhouse pub, Lodge Avenue (junction with Porters Avenue) Dagenham on: TUESDAY 2nd DECEMBER at 8.30pm Entry fee - £1 per person. Teams of between 2 - 6 players. Raffle and free Buffet. All newcomers welcome. Look forward to seeing you there. John Heath ('Quizmaster') |
| Posted by John on Friday 31st of October 2008 10:02:50 AM |
| Race Night! x |
Comment no.346 |
| On The 22nd Of November There Is A Charity Race Night Event Being Held At The Me & O'Brian Pub. The Pub Is Down Gorsebrook Road , Chequers Corner Opposite The Shops! Please Come If You Can And Try And Raise More Money For The Charity!
Thats All The Information Now , If I Get More I Will Let You Know!
Love you John & Bridie! x |
| Posted by eMiLy,. X on Tuesday 28th of October 2008 01:11:24 PM |
| A big thank you |
Comment no.345 |
| To Marina and her family for allowing me into the lives of you all. I am a carer for John and Bridie and although it has only been a few days it feels like I have know you all my life. What a pleasure to know you all, friends and family. I hope I can make a difference. xxxxxxxxxxx Alison |
| Posted by Alibong1961 on Friday 10th of October 2008 04:36:03 AM |
| R.I.P Dad. |
Comment no.344 |
| Just to let every one know who knows me and Marina, that our dad passed away on Saturday the 27th September at 1:30 am he was 73
R.I.P Dad.
Always In Our Hearts. |
| Posted by (uncledanny) on Saturday 04th of October 2008 05:14:38 AM |
| hello |
Comment no.343 |
| A big thank you to every one who came to the roundhouse for the gig by yellowhouse it was amazing big thank you to the band and a big thank you to john for all his hard work in making the quiz night a huge and popular event so please every one come and support him |
| Posted by (uncledanny) on Wednesday 24th of September 2008 12:09:49 PM |
| 'Roundhouse' Quiz Night - Tuesday 7th October at 8.30pm |
Comment no.342 |
| Just to let you all know that the next bi-monthly Charity Quiz Night will be at the Roundhouse pub, Lodge Avenue (junction with Porters Avenue) Dagenham on:
TUESDAY 7th OCTOBER at 8.30pm
Entry fee - £1 per person. Teams of between 2 - 6 players.
Raffle and free Buffet. All newcomers welcome.
Look forward to seeing you there.
John Heath ('Quizmaster')
|
| Posted by John on Wednesday 24th of September 2008 09:12:01 AM |
| Our Links Page... |
Comment no.341 |
| Hello everyone, we will be adding our links page to the site shortly. If you want to add your website to our links page please email us or contact us using the contact details on our homepage. The new links page will be online within a few days now. Thanks. |
| Posted by admin on Saturday 20th of September 2008 06:33:15 PM |
| hi there |
Comment no.340 |
| my email addy is fionamarsh@hotmail.com : ) Email me and i will give you my contact number, many thanks |
| Posted by Fiona on Thursday 18th of September 2008 09:22:07 AM |
| hi there |
Comment no.339 |
| What gorgeous children you have :) Unfortunately i know all too well about this disease as my nephew suffers from it too, he has infantile battens disease and he is 4 years old...Lets hope that they are able to find a cure for this so children and their parents don't have to suffer.
We also have a website for Noah, it is www.freewebs.com/fefe1502 ...Please let me know if i can add your link to our website so people can lend their support to you as they do to us xx |
| Posted by Fiona on Monday 15th of September 2008 09:48:02 AM |
| JOHN AND BRIDIE |
Comment no.338 |
| It was lovely to see you both today
love you both to bits
jane,sam,gem,billy
xxxxxxxxxx |
| Posted by jane wallis on Saturday 13th of September 2008 03:34:56 PM |
| john and bridie |
Comment no.337 |
| Just to let u all know my familly and i are still thinking of u all,keep being strong and look after each other , we think u all amazing xxx |
| Posted by colin on Monday 08th of September 2008 11:31:44 AM |
| Hello,. x |
Comment no.336 |
| Hello,.
Well These Two Children Are Just The Best,.
They Are Both So Strong To Get Through This Everyday.
I Honestly Don't Know How They All Do It,.
But Give Them Loads Of Credit Because They Get My Everyday And They Do A Wondefull Job.
I Wouldn't Wish This On Anyone Especially Not John & Bridie,.You Are AMazing.
Please Keep On Making Donations And Try & Do Anything To Help.They Don't Deserve This In A Million Years!
I Love You Both So Much! XXXXXXXXXXXXXXXXXXXXXXX |
| Posted by eMiLy,. X on Friday 05th of September 2008 12:56:18 PM |
| Hold on! |
Comment no.335 |
| hey
John & Bridie, You's are just the cutest things i've ever seen! I no you's can get threw it!
Lots of love Amy xxx (Shelley's Friend) |
| Posted by Amy. on Sunday 31st of August 2008 09:56:25 AM |
| I Show My Love |
Comment no.334 |
| Wen I Look At Your Pictures My Body Goes All Funnie Like Im Getting Squesed I Look At Them And Thing Y Has This Happened Why Has It Happened To 2 Gorgouse Babybiies x I Dont UnderStand I Hope They Find A Cure
Luv Yah
Forrest x : )♥ |
| Posted by Forrest x : ) on Sunday 31st of August 2008 09:47:58 AM |
| Aww |
Comment no.333 |
| What can i say this is so guttin, all i can do is cross my fingers n hope one day this wont ever happen to anyone yet poor little children all my love . xxx |
| Posted by Boom Shank on Sunday 31st of August 2008 09:43:32 AM |
| Bless x |
Comment no.332 |
| This Is Shelys Friend Use Too Are So Lovely And I Just Wish You Didnt Have This Disease You Look Such Beatuiful Children And I Hope All For The Best x
Lots Of Luv
Forrest |
| Posted by Forrest x : ) on Sunday 31st of August 2008 09:40:25 AM |
| XxX |
Comment no.331 |
| Hey tht is sposed to say im sheelys friend.....x
:(:(:( there sooo cute |
| Posted by jodie on Sunday 31st of August 2008 09:32:08 AM |
| XxX |
Comment no.330 |
| Hey im shelleys i jus wanna say i hope u find a cure.. i jus watch the gallery adn its so sad :(:(
they are sooo cute children..........xxxxxxxxxxx |
| Posted by jodie on Sunday 31st of August 2008 09:30:51 AM |
| XxXxX |
Comment no.329 |
| Shelley Has Shown Me A Video of John And Bridie From When They Were younger .. I Could Not Believe How Halerious They was .. halerious stories can be told but soon ware away .. this video leaves you with a smile always i have never truthely seen any one as funny as them two .. put them together and they are a right pair .. Wish There Wasnt such a disease . But wish there was a cure .. Love You Both xx |
| Posted by S.Martin on Sunday 31st of August 2008 09:30:04 AM |
| HOPE |
Comment no.328 |
| Hiya its keira from holiday. all the best for these two children , theyve been through alot and are still going strong. Hope for the best all my love for John and Bridie and the family. xx |
| Posted by keira-donnelly on Sunday 31st of August 2008 09:29:13 AM |
| John N Bridie X |
Comment no.327 |
| Hellooo ,, Hope you can find a cure ,,When are you doin another fund raiser thing in skl xx luv danielle x |
| Posted by Danielle Barwick X on Sunday 31st of August 2008 09:27:48 AM |
| John and bridie |
Comment no.326 |
| These Two are halariouse .when they was little they are my little cousins and you would not beleve how it has afacted there livesa from normal and funny kids to quiet kids that have not got long left to live and in a terible state Love you John and bridie Never forget that (U) x |
| Posted by Shelley.jane on Sunday 31st of August 2008 09:22:38 AM |
| guestbook |
Comment no.325 |
| If you are reading this then please leave a message as we read them all thanks |
| Posted by (uncledanny) on Sunday 24th of August 2008 06:16:32 AM |
| HOPE |
Comment no.324 |
| I am gutted to hear of another babie who is on this road to hell, please email us so we can try to help you all. They are getting some good results even if it is a fair few years before we can hope to have a cure, And i pray to god we do as it is one we need to beat, if you need to talk to my sister marina phone me on 02085178694 and i will give you her no and tell you all that we no god bless you loads of love danny xxx. |
| Posted by (uncledanny) on Sunday 17th of August 2008 06:18:22 PM |
| Just wanted to say hi |
Comment no.323 |
| My little beautiful son Matthew has been diagnosed with late Infantile Battens, i have looked at this wonderful website and photos with tears streaming down my face. What gorgeous children you have. I hope to that i can support funding and raise awareness to find the cure for this terrible disease. Love sent to you x |
| Posted by mel on Sunday 17th of August 2008 08:14:44 AM |
| Website Updates |
Comment no.322 |
Hi Everyone,
There are some major updates to the site taking place tonight, around 1am - 5am so if you are using the site during these times it may run a little slow or some pages may not be available at those times. The updates are mainly just to decrease the current loading times for the website, as it currently runs a little slow due to she size of the images etc. There are also some slight changes to the menu, as our site is currently expanding very quickly it gets harder to fit it all in the current menu!
There will be NO change to the layout as its taken so long to get it looking good!
If anyone does have any ideas for the website, anything at all that you have seen on other websites that you have liked, please email them to me... lee@lmnetwebdesign.com and i will take a look at them.
Many thanks,
Lee |
| Posted by mrmcminn on Friday 15th of August 2008 09:02:06 AM |
| THANKS |
Comment no.321 |
| YOU HAVE DONE SO MUCH HARD WORK LEE AND YET YOU STILL DO MORE WE CANT THANK YOU ENOUGH ALL I CAN SAY IS IF YOU BOTH MAKE IT DOWN THE BEERS ARE ON ME |
| Posted by (uncledanny) on Wednesday 13th of August 2008 05:00:52 AM |
| Hi |
Comment no.320 |
| Me and lee are looking fowed to coming down to the gig. see you all soon. |
| Posted by vicky on Tuesday 12th of August 2008 09:51:35 AM |
| Our new browser homepage |
Comment no.319 |
Hello everyone. We have created a homepage which we would like you all to use as your browsers main homepage. The page is very basic, showing guest book and blog updates. There is also a google search built into the page. All we ask is that you use this page as your homepage, the more you use the page, the more the charity earns in commission through it.
Click here to go to our new homepage |
| Posted by mrmcminn on Sunday 10th of August 2008 02:10:00 PM |
| You can help!!! |
Comment no.318 |
Hello everyone. We have created a poster that can be put up anywhere you like. The poster is designed just to create awareness of the charity, and to let people know there are collection pots around.
Please feel free to download our poster using the link below and stick it up at any location. The poster is designed for A3 size paper printing, but A4 will still work fine.
Click here to download the poster.
Many thanks! |
| Posted by mrmcminn on Sunday 10th of August 2008 10:12:07 AM |
| Birthday |
Comment no.316 |
| Hi John,
Have just realised it was your birthday yesterday. and I forgot to send you a card!!! Soooo sorry. Will come and visit in a few weeks, maybe go out for dinner again.
Love to you all
Graham |
| Posted by graham on Monday 04th of August 2008 02:29:59 PM |
| Happy Birthday John :) x |
Comment no.315 |
| hope you had a wonderful birthday yesterday john , you deserve it , you the best lil boy ever , no one can say other wise , love you loads , hopefully see you soon , Amy Boxall :) xxxx |
| Posted by Boxall :) on Monday 04th of August 2008 09:18:24 AM |
| thanks |
Comment no.314 |
| Well done lee the site is some thing else. Happy birthday to you lee from us all and for working on the site today just shows why, any one who needs a web site built should look no further. . |
| Posted by (uncledanny) on Sunday 03rd of August 2008 08:07:58 AM |
| Happy Birthday John! |
Comment no.313 |
| Hey, just wanted to say happy birthday to john and have a good day :) |
| Posted by mrmcminn on Sunday 03rd of August 2008 06:30:01 AM |
| HELP IS NEEDED TO FUND THE RESEARCH! |
Comment no.312 |
| This site is only the start we have a yard where we can store clothes, tin cans, old mobile phones, clothes etc that we then sort so we can sell to raise money to put Batten on every ones lips then we will start to raise funds so our researchers can use the money to fight this disease big time BUT I need help in raising money and collecting items so please spread the word and if you have any old mobiles, tin cans old clothes etc please let me know and I will collect them. |
| Posted by (uncledanny) on Saturday 02nd of August 2008 07:50:40 AM |
| happy birthday |
Comment no.311 |
| john i just want to wish you a very happy birthday love you loads nanny margaret xxxxxxx and well done danny and jo on a lovely web site |
| Posted by margaret on Friday 01st of August 2008 01:08:50 PM |
| john&bridie |
Comment no.310 |
| Yuuh Are Both Such Cutee Beutiful Babies And You No Everyone Cares And Loves Yuuh Both . No Matter Where You Are People Are Always Thinking About You. I Hope that they find a cure because you are both stunners that deserve more than anyone .. love you both soooo much xxxxxxxxx Shelleys Mate Sacha xxxxxxxxxxxxxxxxxxx |
| Posted by S.Martin on Thursday 31st of July 2008 05:07:23 PM |
| granchildren |
Comment no.309 |
| love you both. from nanny eve |
| Posted by evamayphilpott on Tuesday 29th of July 2008 01:35:41 PM |
| PLEASE SIGN THE GUESTBOOK |
Comment no.308 |
| Sorry for the long delay in getting the site completed. As the guestbook is back to scratch please can you leave us a message as it means such a lot to the family to know people care. Thanks. |
| Posted by Aunty Jo on Tuesday 29th of July 2008 01:20:38 PM |
| iLoveYou .. |
Comment no.307 |
| When I spend time with you I try make it the best,
I hear your heartbeat inside your chest,
It’s such a steady beat,
That sound I will never delete.
Your soul is so precious to all that love you,
All of us care so much for you two,
Why did there have to be such a disease,
For them to find a cure I would beg on my knees.
Those times when we hear you laugh,
We just love to take photographs,
Your two cute smiles,
Would be seen from miles.
You both mean the world to me,
I would get the army,
To fight this pain off,
So you couldn’t take-off.
All I ask is why this cruelty,
To such two beauties,
They are angels from high above,
That remind me of two white doves.
It’s all happening so quickly,
In life so early,
Two beautiful children,
Who will rest in heaven.
Who ever may look after them,
I’m sure it can’t be easy it must be mayhem,
You can‘t leave us yet,
Because you know it will make us all very upset.
John & Bridie I Love You Both So Much
You will never be forgotten!
|
| Posted by Danielle-Cousin on Tuesday 29th of July 2008 09:49:50 AM |
| The New Guestbook |
Comment no.5 |
| You may now post your comments on our new guestbook. Sorry for the downtime, it won't happen again. |
| Posted by Admin on Wednesday 02nd of July 2008 09:30:19 AM |
|
